A face of Progeria in India, Nihal Bitla passed away at age of 15. Nihal was suffered from health problems. Nihal Bitla is country’s first reported case of Progeria. He was suffered from a rare genetic disorder progeria. Nihal was the face of the Progeria Research Foundation’s campaign to detect undiagnosed children living in India.
Nihal and his family lives in Bhiwandi. He and his family were in Telangana to attend wedding when he was suffered from brain stroke. Nihal was admitted in hospital and he died at the hospital in Telangana. Nihal is one of the 60 children in India who has been diagnosed with progeria.
Bitla was treated at the Children’s Hospital in Boston, US to receive the only known treatment for progeria.
Nihal’s father Srinivas Bitla said that, “We will continue our support to increase awareness on the disease and help other families who have children with this disease.” Nihad had three wishes in his bucket list which included a trip to Disneyland, seeing the Honda Asimo Robot, and meeting Khan. One of these wishes was fulfiled. Nihal had met Aamir Khan in 2015. Nihal was one of Aamir Khan’s biggest fans. Aamir Khan’s Taare Zameen Par movie was the big inspiration of Nihal.
“Nihal, your contagious smile, positive attitude, inspiring chats, optimistic outlook will give us strength for years to come. You have left us behind with heavy hearts for a higher place, Rest in peace our dear friend. Our thoughts and condolences with family and friends,” Team Nihal, the Facebook page that manages the progeria campaign, posted last night.
Nihal Bitla was one of the 124 children around the world who suffer from this rare genetic disease
See Some Photos of Nihal
Nihal Bitla RIP
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